Thinking of Freedom and Independence with a Twist
It is right to think of our freedom and independence on this Fourth of July weekend. We wave flags, shoot fireworks and join friends and relatives at neighborhood picnics and community celebrations. Rightly, our thoughts are with those serving our country, especially those in harms way. Included in our celebration is the remembrance of wars past and the veterans, living and not, that helped keep our democracy what it is today. The Greatest Generation (those parents and grandparents serving in World War II and Korea) we herald as the very best of them all.
Sadly, too many of the Greatest Generation are being denied those very freedoms and the independence we cherish. They languish in nursing institutions (while the industry euphemistically calls them homes, that is an absurdity and corrupts everything good about home and what was eulogized in the Wizard of Oz by Dorothy's longing cry, "I want to go Home Toto!"), forced to stay not because of their mental infirmities or physical disabilities, but because many states restrict where Medicaid recipients live and what they want to do. Too many of these profit driven corporate institutional systems operate no differently than a regimented, confining and stinking gulag (a penal system of the Union of Soviet Socialist Republics consisting of a network of labor camps. http://www.merriam-webster.com/dictionary/gulag; see also Pierre Tristam, American Gulag: Nursing Home Profiteers ( Candide's Notebook, September 24, 2007 http://www.pierretristam.com/Bobst/07/cn092407.htm)
Ripe for attack, these gulags are the basis of litigation currently being fought in Florida by a cadre of legal advocacy groups including the AARP Foundation. (See Emily Sachar, Your AARP: The Law, (AARP Bulletin, June 2008). While the argument is that state elected officials and policy makers should not be second-guessed when making choices about medically necessary services, too often those choices are dictated by the nursing institution industry, with its powerful lobbying forces in every state and Congress. Consider that nursing institution confinement is often the most expensive for taxpayers, while other more appropriate residences run at significantly lower costs. If our democratic society declared a mandate of "least restrictive alternative" that must be implemented, it would probably send shock waves through the nursing institution industry, driving the stock value of for-profit companies through the floor. This is exactly what the nursing institution lobby has been able to block.
What is disappointing (but understandable - the target seems to have been narrowed to achieve the best results under the framework of the Americans with Disabilities Act) about the litigation in Florida is that it is being asserted primarily by persons with disabilities on Medicaid and being forced to reside in nursing institutions. While the plaintiff class may include some of our elders, it does not embrace all of our elders confined in these gulags. These elders, so many of the Greatest Generation, are languishing in nursing institution confinement not by reasoned quality of life determinations, but more often by indiscriminate, even arbitrary dictates. A more cynical, even sinister view is that these decisions are intentional, orchestrated by the unholy alliance of the medical, health care and nursing institution industries.
Those elders of the Greatest Generation, caught in inappropriate restricted confines of nursing institution gulags, have lost their freedoms and independence. These elders are forced to obey the institutional, medical model regimens that dictate when to get up, what to eat, when to bathe, when to go out and where, and who to see and not see. In too many states, those under confinement are handled and manhandled by untrained staff being paid at the lowest level. Turnover is constant, criminals and sex-offenders are hired without background checks, theft is rampant, and neglect and abuse is documented at alarming rates, even with systemic cover-up.
Many states do little or nothing, listening to the well-planned approach of the nursing institutional lobby that makes sure elected officials are supported in their election campaigns and government and agency officials are promised and given lucrative industry positions and lobbying contracts when they leave so-called public service. Some will whine that everything is within the bounds of law, but it is surely not moral or ethical. It is only within the bounds of law because the nursing institution industry has paid their lobbyists to keep it legal even when it is not for the good of the people, but good only for the for-profit nursing institution industry.
Contact your elected representatives to fight for the freedom and independence of our Greatest Generation, assuring that they are provided the least restricted environment in which to live their remaining days.